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Voluntary CP Registry

Time to time We are going to share Few of our very heart touching stories during our voluntary CP registry in Pakistan.

WhenWe at Step-Up Pakistan  decided to spread awareness about CP in Pakistan , we saw a need to set up a database, it  was a huge task and  now it seems even bigger than before, but a one little advertisement in a Sunday NEWS paper brought so much response from allover Pakistan that it made our commitment to this cause more stronger.  It is rural or city, educated or un-educated desperation and the helplessness of families with CP or ASD like disabilities is not much different, ...We asked a few basic facts and reached to surprising  facts,and common scenarios in  these cases ; Most kids were born in hospitals or hospital like clinics (instead of an  expected at home traditional birth),even in smaller towns.Most of the kids faced oxygen deficiency at birth, or cried late. Most delayed development was noticed  by families within first year of birth.Most parents repeatedl…
Recent posts

Graveyards In Lahore Are A Disgrace! Focus: Miani Sahib

I repeat, the graveyards in Lahore are a disgrace!
Beginning with the historic Miani Sahib Graveyard on Bahawalpur Road, there is much that needs to be done to make the graveyards in Lahore functional. 
Litter and Filth Dominate the Graveyard's Landscape
The current level of disrepair at Miani Sahib is an insult to the memory of all who now rest within it's grounds. Garbage is found everywhere, on top of the graves, littering the dirt paths and even crowding the roads surrounding the area.  Making your way in Miani Sahib is a stressful experience, as you never know when you may step on animal litter, or rotting animal/human (?)bones. Musicians and dholwallas playing music at all hours is another unpleasant discovery as it offends the religious and spiritual sensibilities of most of the visitors.
Nowhere to Step!
There is nowhere to walk without stepping on the dilapidated graves themselves. The few walkways and pathways have now been converted into newer graves. Many of the grave…

Vaccine Related Injuries Cause Worldwide Concern

Vaccine Related Injuries Cause Worldwide Concern
Parents around the world  are concerned about  the Vaccine related issues and their choices in this regard, Vaccine or immunization requirements are different in developing countries, however  at times WHO restrictions or recommendations, make them implement compulsory vaccine campaigns , like #Polio or other vaccines for apparently controlled diseases.
There are too many wrongs in this process  of Vaccines and immunizaton  work,  like OPV #Polio vaccines which are not allowed in developed nations where most of the developing  countries are still consuming them,it raises questions but no one is ready to accept the reality  yet, which represents only two  possible reasons behind this denial, one an urge to control  the world by few in leadership role, and secondly their funding sources " the Big  Pharmaceuticals" involved in this worldwide "Vaccinesbusiness".
Vaxxed a documentary about  Vaccine related controversy is get…

نوجوان سيريبرل پالسی سے متا ثرہ افراد اور انکے خاندان والوں کيلۓ ايک مشعل راہ Muratcan Cicek gets most Prestigious Scholarships from Google

Muratcan Cicek received one of the most prestigious scholarships from Google, overcoming his disabilities stemming from cerebral palsy.نو جوان مرات کين ترکی کے ايک چھوٹے سے شہر ميں سی پی کے ساتھ پيدا ہوا۔اسے چلنے،بولنے اور ہاتھوں کےاستعمال ميں دشواری تھی ہر سکول نے اسے داخلہ دينے سے انکار کر ديا جس کی وجہ سے اسکی ماں نے اسکی تعليم گھر پر ہی شروع کردی  اور اسکو بنيادی حساب اور پڑھنا سکھايا اورمرات نےبعد ميں ايک کمپيوٹر لينگويج ، ہسپانوی اور انگريزی بھی خود سے سيکھ لی ۔ تيسری جماعت سے سکول شروع کيا اور اپنے سکول کی کمپيوٹر سأنس کی کلاس ميں پہلےنمبر پرآيا وہ پچھلے تين سال سے ايک ايسے سوفٹ وئر پر کام کر رہا ہے جومعذور افراد کيلے زندگی بہتر بنا سکے وہ پہلاترک ہے جسے گوگل نے معذور افراد کيلۓ ايک بہت اعلیٰ پاۓ کا وظيفہ ديا ہے تاکہ وہ اپنا اور اپنی والدہ کا مشترکہ خواب پورا  کر سکے ۔ مرات اپنی کاميابی کی وجہ اپنی ماں کو قرار د يتا ہے جو ہر قدم پر اسکے ساتھ تھيں۔ اسکے علاوہ اسکو ايک يونيورسٹیميں  پی۔ايچ۔ ڈی  ميں داخلہ بھی مل گيا ہے

Cochlear Implants in Pakistan for Hearing impaired پاکستان ميں دستياب کوہيلر امپلانٹس

After Cochlear Implant, there is  a lot of curiosity and hope for families with hearing impaired children, considering that each and every case is different and unique,only an experienced and qualified physician can make the final recommendations for your child, however it is important to do your own research and homework sort of thing before you sign up for any big investment financially or physically for your kid.کوہيلر امپلانٹس جب سے پاکستان ميں دستياب ہوۓ ہيں سماعت سے محروم بچوں کے والدين ميں اميد کی کرن روشن ہوگیٌ تاہم کسی  بھی بڑا قدم اٹھانے سے پہلے ضروری ہے کہ اپنے طور پر اس موضع پر اپنی معلومات بڑھايں اور کسی ماہر اور متعلقہ تجربہ رکھنے والے ڈاکٹر  کے مشورے اور زيرِنگرانی ہی کروايں۔يہ ايک بہت مہنگا اور لمبا عمل ہے ہر پہلو کو جانچ کر ليں،نيچے کچھ لنک ہيں ان کو پڑھيں اور شيرٔ کريں

🔖Read Story and Struggle for a Cochlear Implants in Pakistan 🔖CHK Performs Cochlear Implant Surgery 2016🔖Bahria Town Hospital Lahore Takes the Lead in Cochlear Transplant

Alam Audiology Clinic Lahor…

Dangerous Doctors Conducting Illegal Kidney Transplants

Going to the doctor can make you feel nervous but it should not be a cause for serious concern. In our first post about Dangerous Doctors, let's turn our attention to the illegal kidney transplants scandal in Lahore. 
Fawad Mumtaz, the doctor leading the group of criminals is a plastic surgeon and he is not qualified to carry out sensitive and life-endangering surgical operations like a kidney transplant. The other doctor is Altamash Kheral, who is under training as anaesthetist at Lahore General Hospital and holds the general secretary post at the Young Doctors Association. Not only was the group carrying out these 'off-the-table' procedures illegally, they were conducting them from a private residence.
Organ trafficking is widespread because there are not any fast, safe methods to speed up the kidney transplant option within the hospitals and clinics. Rather than luring in poor people who will sell their precious organs and get operated on in unhygienic environments, it is…

What is #Pakistan's take on mosquito-borne viruses #Dengue #Chikungunya and #Zika ?

Read it below while keeping in mind #WHO's recent report about  #Karachi  with alarming concerns for an un controllable Chikungunya  spread in #Sindh #Pakistan.

Click to read the original post here;
Are mosquito-borne viruses #Dengue #chikungunya are more deadly than #Zika ?
Back in 2015,Brazil reported a horrific surge in birth defects. Thousands of babies were born with brain damage and abnormally small heads, a condition called microcephaly.
Scientists quickly concluded the Zika virus was the culprit. So when Zika returned last year during Brazil's summer months of December, January and February — when mosquitoes are most active — health officials expected another surge in microcephaly cases.
But that never happened.
"We apparently saw a lot of cases Zika virus in 2016. But there was no microcephaly," says Christopher Dye of the World Health Organization.
The difference between 2015 and 2016 "is spectacular," he says.
Health officials were predicting more …

Over View , Looking Back and Looking Forward !

We at  Cerebral Palsy and ASD Awareness Pakistan trying to reduce concerns for  the parents of children with developmental delays.We provide guidance and awareness for these families (it is an all volunteer effort), We connect  them with  relevant services to improve  quality of life , one person at a time!.

As we are continuing our #CP volunteer #registry we noticed that a lot of cases are more representative of #Autism than #CP or overlapping in both conditions. Most of  these cases range from 2 years to 20 years old either from villages or big cities, educated or uneducated all parents are equally frustrated, isolated and confused from "where to seek help" to  "what to expect" kind of  never ending worries about their kids future.

Despite trips to specialists in big cities, including repeated expensive tests these parents with special needs kids still face confusion, and their despair only increases with time.

While  state run Special -Ed schools in Pakistan are eq…

عالمی ہفتہ براےٌ حفاظتی ٹيکے , کتنےمحفوظ بحث جاری ہے...?.??.Vaccine Debate Continues

:2017ورلڈاميونایٔزيشن ويک يعنی” عالمی ہفتہ براےٌ حفاظتی ٹيکے” منايا جارہا ہے اس کو منانے کا مقصد وبایٔ بيماريوں سے بچاؤ کيليے حفاظتی ٹيکوں کے بارے ميں آگاہی پھيلانا ہے  مگرچونکہ اس کا تعلق بچوں کی صحت سے ہے تو يہ اخلاقی اور انسانی ذمہ داری حکومتی اداروں پربھی عائدہوتی ہے کہ وہ ہر پہلو سے آگاہی ديں چاہے وہ !مثبت ہو يا  منفی

:حفاظتی ٹيکے /اميونایٔزيشن

عام زبان ميں ویکسين کہا جاتا ہے ُپاکستان ميں زيادہ ترلوگ صرف پوليو ويکسين سے ہی واقف ہيں اور پچھلے کچھ سالوں ميں تو اقوام  متحدہ کے دباؤ کی وجہ سے پاکستان آنے والےغير ملکی مسا فروں کوبھی پوليو کے قطرے لينے پڑے کيا تمام ويکسين  مکمل طور پر بے ضررہيں؟؟
بظاہر ويکسين ايک بہت اچھی طبی ايجاد سمجھی جاتی ہيں اورماضی ميں بہت
سے وبایٌ امراض کو بڑھنے سے پہلے ہی روکنے يا ان کی شدت کو کم کرنےميں مددگارثا…

Cerebral Palsy Awareness Sessions at St Stephen's School Lahore

Maternal, newborn and child health

CPASD Awareness Pakistan

CPASD Awareness Pakistan
Set them Free !

United Nation's S.D .G